We have made it to the other side of the most current of transitions… Now, Todd is an active participant in the world of outpatient therapy. It is a whole new level of different and an oddly busy world. Regular comings and goings are a daily piece of the equation, complicating things and schedules that can be inflexible. Adaptation. The therapist home visits are a thing of the past, the once was. It was very necessary for the therapist to come to us for the period they did. It was an amazing period of time beginning in a wheelchair and ending with stairs, some major developments and accomplishments! To merely be awake, clean, and fed before therapy began, was all we could muster when we first returned home and a tall order indeed. The changes are quite telling of how far we have come to in order to be able to tackle the new hurdles, distractions, and challenges of the outpatient environment. We are becoming familiar with the new team of therapists and the approach to Todd’s needs is naturally different. This is a welcome difference. As the therapy system changes you slowly become more and more responsible for managing, maintaining, and integrating a great deal more on your own. Slowly we gain independence. Our home is now a sanctuary separate and integrated to the daily therapy regime. It is less a public sphere and is now a much, much more private environment for us (which is a very nice transition).
The holidays were kind to us. The flu reared its head but we actually enjoyed doing nothing for a change. We have not had such an opportunity surprisingly enough. There has been so much work for us on a daily basis. Our first Christmas at home since the accident was definitely something worth celebrating and we spent a great of time just enjoying one another alongside Todd’s increased independence and healing.
Then Todd’s birthday followed….. he now has a survived a half a century! Todd had some difficulty wrapping his mind around it……and when asked how he feels. “Older now.” I remind him that much of what he is interpreting as “older” is actually the stiffness and physical limitations that are a result of the injury/ prolonged bedrest. In time with continued physical and occupational therapy these “issues” will mellow.
So many milestones for us and spring is right around the corner….upon us. Last February we were landing in Oakland Airport and leaving Amsterdam which had itself become familiar and safe. Our home was now the unknown.
Todd continues to plug away, with a smile on his face and rarely utters a complaint. It is a great challenge to make life work and give the commitment of time and discipline required by Todd’s therapies. You must implement the therapy learned during the day and find time to cook, clean, and meet life’s many demands. That is life for you though, an amazing juggling act.
I say now we are living the dream….. and someone else’s nightmare
What a joy it is to wake up every day with a guy I was told would most likely never exist. Not just once or twice, but over and over. It is one of the things that an injury of this magnitude can do to people…. to strip them/you of hope and determination. (Luckily we did not cave under the weight of this potential mindset!) I have become so aware of the impact this has on other families and stories different and like our own.
Now that we are part of the outpatient community we are much more connected to other injury survivors, caregivers, and some of their stories. It makes us so appreciative of our community and life.
A community that we are looking forward to connecting with again. Keep your eyes out for us. We love you and miss you.
April 8, 2009 at 8:58 am
Todd and Alex, you were my inspiration. i knew if you could do it, so could i. all the luv, sj
April 8, 2009 at 12:09 pm
hi todd and alex,
wanted to send my love out. hearing how well you are doing gives me great joy. i had dinner with barry and chico the other night and we were talking about how much you meant to all of us, and how spectacular your recover has been – which is so much an alex and todd recovery.
sorry i missed your birthday, but maybe we can toast our 50th together (mine is in nov.) next time I’m up in SF.
xo,
david
oh – and hi to susan joyce (the post above in the blog) – so happy you are working your way back to health.
April 9, 2009 at 7:48 am
Thank you so much for taking time out of your busy schedule to write an update on your lives. I check daily, and was thrilled to see today’s post. The news, as always, is so positive, heartwarming AND inspiring. Clearly your hard work and persistence is paying off in a big way. I am very happy for you both.
Sending loving thoughts your way everyday.
April 13, 2009 at 10:55 pm
See you soon!
April 16, 2009 at 4:26 pm
Hi. I don’t know you or Todd, but I found your blog on the net. My hubby sustained a severe TBI in a car wreck that we were both in last October. He has been home 1.5 months and is in outpatient therapy. I have found your writings helpful. It is hard for anyone to understand what it is like to be a wife of TBI survivor.
Please visit my blog if you want and read some of our story too!
April 25, 2009 at 11:43 am
Todd and Alex, I was so happy to see another update and to read of the amazing progess you continue to have. What an achievement. I remain astonished at how you both worked your way through this, thanks to hope and persistance. I continue to use your story to those in similar situations who often feel the end is near. It is the most inspiring feeling to know I was a part of your journey!!! I am thinking of you always….
All the best,
Stace