So we have left Herrick. It is a mixture of many feelings but we miss those guys. Those walls and those people had become our home, safety net, and family. These became the people we depended on and those who we could trust to keep Todd safe and improving, they were our advocates and army. Today began the new therapy team and they are off to a great start…..it is new. We again are amidst a full and demanding schedule of therapies but we now have the advantage of our home turf. New in the world of TBI change can be distressing for Todd. So we are trying hard to get him some rest and me too. It is the fourth day and it is expected to take at least a week to find our footing. Our home and therapy studio are coming together and Todd is happy to be home…..but as with anything in life not knowing what is next can be challenging for the best of us. It feels like we were standing on the edge of a high beautiful rock formation just above a cool pool of water and are now in the air between the jumping point and the cool water below. Thing is even when you hit the water you can’t really see what is below.
Before we left the hospital we took Todd on a field trip to himself experience the beauty of the gear wall…. that and the video have allowed Todd to first hand feel and see what can come from all the love and caring that surrounds him. It was an amazing sight to behold. It was quite a treat for us.
Special Note: We are still filling positions for a regular caregiver team so if you know anyone special in this arena, that can bring a smile to our Todd’s face please send them my way. Short shifts mostly am/pm ………mid day is covered by therapy. I thought I would let you know in the event that something good could come our way on this front.
If you have any leads call me or email me at mizalex@yahoo.com. Thank you.
July 29, 2008 at 11:27 pm
I’m happy to hear that you are returning to the familiarity of home. I wish you so much. My thoughts are with you.
July 30, 2008 at 8:39 am
yay! i imagine you guys diving into a clear blue pool, quickly touching the bottom and floating back up again into the clarity of a bright new day. cheers to smooth sailing ahead!
August 1, 2008 at 9:29 am
Home. I have to pinch myself to realize it is finally true. Alex, your posting focused on the work ahead, your bright and brightening future, but I would love for a moment to acknowledge the trophy of simply being back. Only ten months ago, that was by no means a guarantee. But ten months ago you told me that it would happen, and now here you are. Remarkable.
I’d also like to share with everyone the excitement I’ve felt while seeing Todd lately, watching him reach and grasp, communicate with his hands, write, crack devious jokes using the barest of signals, and EATING. Man, that guy has not lost his appetite for good food. Fresh fruit, tacos, salads, sandwiches, all are devoured readily using his own hands, spoon, and fork. Chips and guacamole? No problem, except he might hog it all.
The sky is the limit, or maybe it’s not a limit at all. Thank you Todd and Alex, for your example, set every day.
August 3, 2008 at 4:19 am
boehoehoe.. im so happy, i cry.
sweeties.. why dont i live nearby, so that i can promise to do every thursday morning shift, and sleep right tru it, walking in at therapytime.. aarch.. i could do the late night evenings tho! watch a Grant movie with Todd while Alex stretches her legs in the eveninglight!
Thanks Liisa, thanks Alex, THANKS Todd, I have to make a plan!
Love from the Netherlands. xx T
August 3, 2008 at 10:13 pm
It was so great to have Todd here, his joy at the wall (and Kal’s piece too) was so wonderful to witness!
Yesterday we pulled the wall out for everyone to enjoy before a performance, and someone wrote a check right there!
I’m here for you sweets… anytime… just call… Too bad we can’t get more of that Toetsie goodness!
August 4, 2008 at 2:32 pm
Alex, I am so happy to hear that you are home with Todd the Very Amazing, and that so many beautiful things are happening (so fast!!)… I send you my love!
Selby
PS I don’t like cantaloupe either, so I completely empathize.
August 5, 2008 at 9:10 pm
What joy to think of you at home at last!!!
Sending love.
Please let me (us) know what we can do to help, support you.
xxoo Tiffany
August 8, 2008 at 12:49 pm
What a milestone. have been reading a bit of another blog of which I think you, Alex, and all of Todd’s friends are a great example.
“We can lend the concentration of our minds, the fearlessness of our hearts. We can be a reminder of stability and confidence. We can expand our heart in such a way that it can inspire the individual to do likewise. Then we become a compassionate refuge. Our presence restores trust in the capacity to heal.
I don’t heal because my problems are being solved. I heal by reconnecting with what I feel I lost in the fear and contraction….my innate capacity to heal. This is felt as loving self-acceptance, a quality of openness to my condition and the dynamic companionship of compassion. It breeds courage and allows us to go toward and learn from the suffering I might otherwise try to avoid. That’s how we restore wholeness.
here’s to Todd, Alex and everyone who is supporting him