Each and every day there is progress. The last week has been a bit more demanding trying to keep up with the inevitable changes and demands posed by a nurses strike (the end of which is in sight). I spend considerably more time at the hospital which means at the moment I rarely leave. It does help to be more involved with the unfamiliar nursing staff and tonight I left to rest at home and check in briefly. That, alongside with our busy schedule has kept me a bit quiet……routine as it turns out is beneficial to us both. Routine this week is a bit out the window but we are all working hard at the hospital to ensure Todd gets everything he needs and more.
Watching Todd heal (slowly) is without a doubt a huge gift and also requires a very clear and honest perspective. It is a bit like watching a snail cross the highway, without markers or references you could easily not notice or forget how far we have come. The steps Todd is making are small, amazing and steady. He is gaining strength and best of all he is more and more attentive! It is a beautiful thing to see Todd shining through the slowly lowering massive dosages of a triple combination of epileptic medications. (We are weaning one off, by lowering the dosage incrementally each week) The seizures remain at bay, we have very little idea of what lies ahead in the next chapter, but we celebrate the day-by-day progresses and achievements. Todd is gaining weight and strength and his therapists are often amazed. I say regularly to Todd that we continue to exceed most all their expectations……..and will continue to do so. We have gone through months in bed, ICU three times, induced coma also three times, and now Todd is… with the aid of a cool apparatus that takes up the majority of his body weight, walking down the hallways and stopping nurses and patients alike in their tracks! He is completely over most soft squooshy mooshy foods and is more in search of good flavors and familiarity. This week’s hits include his morning cereal (just as at home, crunchy is good) and tangerine juice, also brought him some delicious market hall ravioli ( a dependable fav at our house) and ice tea for lunch, enchiladas also went over well. He seems to favor savory over sweet, and his texture preferences sometimes come as a surprise to his therapists but not to me and those that know him. He is a texture kind of guy, likes guacamole but hates avocado from which it comes …that kind of thing. He is sooo ready to move on and we do everything in our power to provide him with the opportunity to do just that! His smiles are more frequent and this morning when we woke up together, side by side, I was greeted with the first sentence in weeks. Todd is still without a doubt as charming as ever! Every time I am faced with doubt or frustration I remind myself that there is no way we have come this far to be even remotely close to done, I also don’t believe that Todd would fight so hard if he did not feel clearly and strongly that he could come back to the life he loved so much.
The other thing I often say is …….we have an army behind us that have every intention of making sure we make it through. Thank you for that.
There are still so many people we would like to see and touch and truth be told I don’t even know where to start. Just keep checking in with us or me please….mail and email is a good place for us all to start.
Now I have to see if I can get my right boot off with a somehow broken zipper without resorting to scissors or an exacto knife! (Thanks to my handy dandy Leatherman the boot did make it off without any permanent damage, phew!) Just when I was contemplating how many days my socks could last, and how to take a bath with my right foot still clad in leather.
March 27, 2008 at 9:15 am
So glad that the old pathways are reasserting themselves (he doesn’t like avocado???) and there’s clear progress on this long road.
I’m really excited about hosting a Todd benefit… I can’t wait!
Let me know if there are any smallish, not so dangerous, robotic art pieces of Todd’s I can include in the gallery show.
Big kisses and yummy food!
March 27, 2008 at 10:06 am
One of my cousins has been a paraplegic for the last 20 years- and uses some funky robo-walking apparatus, that I wouldn’t be surprised might just be the same exact thing they have Todd in.
Jimmy is so overjoyed “walking” around in it- just being able to stand and look at people eye-to-eye on an even line, is the most uplifting and exhilarating thing for him and lifts his spirits so.
I can only imagine the exhilaration Todd is feeling, as I think of Jimmy’s feedback coming from a man who is confirmed will never walk again, and thinking of all the encouragement and excitement it’s giving to our man who will not only walk and run and kayak again, but so much more.
To sentences, cuddles, textures, and footsteps, xo! n
March 27, 2008 at 12:30 pm
Dear Alex; A POST! Mike and I check in frequently to see how things are progressing. You and Todd are often in our thoughts.
“we” take so much for granted about our daily lives.
s+m
March 27, 2008 at 2:06 pm
Thanks for sharing Alex, you two are amazing people from what I have read here. Way to go Todd on all that you have done thus far. Think about you two often and the progress Todd is making.
A caring reader from Michigan
March 27, 2008 at 3:19 pm
Hi Todd and Alex,
Just wanted to let you know we think of you often, check in with the blog and cheer your every step. Glad you are here in CA for the beautiful spring and close to home, family and friends.
March 27, 2008 at 4:05 pm
that’s all really terrific news! thanks for keeping us updated. both of you are so inspiring. more and more strength every day. i’ve been listening to radio lab podcasts (WNYC??) and there’s plenty of brain fodder that is just so cool. learning how humans and animals cognate, perceive and react and the miracles that the brain is capable of. so cooool! and todd is living proof.
)
.
March 27, 2008 at 7:12 pm
Hi Alex! Hi Todd!
Mountains to hills
Hills to valleys
Valleys to the smooth road ahead
It takes amazing people to share a love so strong.
God bless you both!
Love,
Sherry
March 27, 2008 at 7:41 pm
standing, beside and with you both…sj
March 28, 2008 at 2:11 pm
We’re thinking about Todd daily and following his recovery!
Don’t forget about the “Pranks Film Festival” coming next week. Special Todd Blair Benefit night is Thursday April 3, 9PM at the Roxie Theater 3117 16th at Valencia, SF. Mark Pauline has agreed to a live Q&A with Vale — also will show some of the machine demo tapes by Marian Wallace: Maker Faire 2007; SRL V1 at the Lab, 2003; and the fabulous dual screen Berkeley Art Museum show, taped by Scott Beale and Marian. Also will show a Mark Pauline interview — taped in the ’80s.ALSO the afterparty at “the Homestead” (corner of Folsom/19thSt.) will follow this show. Hope to see you there! Check the Todd Events page for more details and more on the copious other shows April 1-3. We’ll be giving away a Pranks hardback AND Pranks Film Festival shirt as door prizes. Money from this show to Todd Blair and Alex, so tell your friends.
March 28, 2008 at 3:23 pm
WOW ! this is hardly a little bit! this is such exciting news, to read of Todd’s walking in what i am imagining as a Robotic Transformer cage thingie that allows him to stretch his muscles and put some weight on his tendons….
And a sentence!!!! I am doing a little dance to myself of joy for this news! YAY!!!!!
Let the good food nourish him further, while he has you and so much love to lend him strength.
Rock on, TODD!
March 29, 2008 at 8:47 pm
Just to let you know that a stranger to you is cheering you both on.
A sentance is a wonderful thing. The implications are huge!
April 1, 2008 at 9:35 am
hi there!
steve tessa and i have moved to bernal heights and i’ve been seeing couples that resemble/remind me of you two all over the place…i wonder what that means…one couple was in the red leaf bookstore (when chuck prophet played the other night), another one was in maggie mudd’s ice cream parlor (where the two cutie lookalikes ordered scoops on fresh-made just-poured waffle cones), and another just strolling down cortland with their dog (tessa and i counted 14 dogs that day).
i think i was looking through a portal to your future
xoxxx taara